Two days..

Two days of squeezing in every thing that we want to do, going to new places, seeing new things. All for the little spark of wonderment and joy on my darling daughters face, the glorious and endless babbling that will ensue as we cuddle the end of the day away…. Two days.

Many of you wonder what it is like to know what your child is facing and ask how can one stay so positive.
The truth is, seeing how strong my daughter had been in the past, through all that she has had to go through, gives me a place deep in my soul to pull some semblance of fortitude from…. And fake it it….

For tonight, when she lays her pretty head down to sleep, the mask will shatter as the tears pour out. Only to be put on again tomorrow.

I AM A CRANIO DAD, I am scared out of my mind and as sad as I should be, I will really enjoy these next two days.

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Today was awesome!

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Craniosynostosis Awareness Day! Get your shirts.